I found a national support group for families with children who have congenital heart defects. A local chapter was started in Tucson at the beginning of the year. It's called Mended Little Hearts. The group here in Tucson gets together once a month for meetings and they also have a lot of things planned for the kids to get together and play. It seems like a great group and hopefully we can get involved.
The Tucson group has a myspace page...
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